By pointing the way to better diagnosis and treatment – and hopefully an eventual cure – research is vitally important to improving the lives of the more than 40,000 British Columbians living with schizophrenia.
“The only way schizophrenia is going to be ‘beat’ – if you will – in the long term is through more understanding, going from basic chemistry up to helping people cope in their day-to-day life,” says Gerhart Pahl, chair of the BC Schizophrenia Society Foundation*.
“We believe heavily in research, and for those of us who have the illness in our family, we are looking to research to someday beat this disease.”
Funding research is one of four areas of focus for the Society – along with education, advocacy, and support for families. This investment, which provides direct benefits to individuals living with and affected by schizophrenia, is supported in part through a strategic partnership with the Michael Smith Foundation for Health Research (MSFHR ).
Since 2013, the two organizations have jointly funded three BC researchers whose work is helping to mitigate schizophrenia’s human and economic toll.
University of Victoria neuroscientist Dr. Leigh Anne Swayne, a 2014 MSFHR Scholar, is the latest beneficiary of this partnership.
Swayne’s research is focused on two main areas. The first is the role that complex proteins called ion channels play in brain development, injury, and repair. The second is how these same ion channels transmit the electrical signals that underlie the beating of the heart and how mutations in the proteins in the ion channel can lead to certain heart conditions.
“Increasing our understanding of the roles of ion channels in the developing brain might give us further insights into neuro-developmental diseases such as schizophrenia and autism,” Swayne says.
“I’m very excited about this award, most importantly the positive impact it will have on my research program.”
“We essentially double what we can do” For the BC Schizophrenia Society and its supporting Foundation, the partnership helps stretch donor contributions even further through the availability of matching funds.
“If there was a project that needed a hundred thousand dollars, we would have to come up with a hundred thousand dollars,” says Pahl. “But now, with our relationship, we would perhaps pay fifty thousand dollars, and the Michael Smith Foundation would fund the other fifty.
“We essentially double what we can do, so this is a very enticing and important part for us.”
Pahl also notes that partnering with MSFHR allows the Society to support research without having to organize a peer-reviewed competition and coordinate award administration, both of which can be burdensome for small organizations.
“We don’t have this expertise and capability, but we still wish to continue funding research. It is important to us.”
The BC Schizophrenia Society was founded in 1982 by families and friends of people with schizophrenia. Since then, the Society has grown into a province-wide family support system with 24 branches and more than 2,800 members.
In addition to supporting research through partnership with MSFHR, the Society awards annual research grants and scholarships to young researchers studying schizophrenia and related conditions. The Society has also raised the funds to endow the schizophrenia research chair at UBC.
Related links
BC Schizophrenia Society
List of researchers jointly funded by MSFHR and BC Schizophrenia Society
* Note: The BC Schizophrenia Society Foundation raises funds for schizophrenia and the programs and services offered by the BC Schizophrenia Society.